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Topic Guide

Dementia & Alzheimer's

By:

WVMLlibrarian

West Vancouver Memorial Library

Staff-created list

Check out these great resources for people living with dementia and for their loved ones and caregivers.

By:

WVMLlibrarian

West Vancouver Memorial Library

25 items

25 items

Creative Care

Creative Care

A Revolutionary Approach to Dementia and Elder Care

by Basting, Anne Davis

Book - 2020

Early in her career, Basting noticed a problem: today's elderly-- especially those experiencing dementia and Alzheimer's-- are often isolated in nursing h...Show more Early in her career, Basting noticed a problem: today's elderly-- especially those experiencing dementia and Alzheimer's-- are often isolated in nursing homes or segregated in elder-care settings, making the final years of life feel lonely and devoid of meaning. She developed a radical approach that combines methods from the world of theater and improvisation with evidence-based therapies that connect people using their own creativity and imagination. Here she uses compelling, touching stories to inspire and guide us all in how to connect and interact with those living with dementia. Show less

Early in her career, Basting noticed a problem: today's elderly-- especially those experiencing dementia and Alzheimer's-- are often isolated in nursing h...Show more Early in her career, Basting noticed a problem: today's elderly-- especially those experiencing dementia and Alzheimer's-- are often isolated in nursing homes or segregated in elder-care settings, making the final years of life feel lonely and devoid of meaning. She developed a radical approach that combines methods from the world of theater and improvisation with evidence-based therapies that connect people using their own creativity and imagination. Here she uses compelling, touching stories to inspire and guide us all in how to connect and interact with those living with dementia. Show less

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Four Umbrellas

Four Umbrellas

A Couple's Journey Into Young-onset Alzheimer's

by Hutton, June

Book - 2020

June watches and worries as her husband, Tony, gradually changes his interests, goals, and behaviour. The signs of dementia are all around, but a diagnosi...Show more June watches and worries as her husband, Tony, gradually changes his interests, goals, and behaviour. The signs of dementia are all around, but a diagnosis of Alzheimer's takes seven years. Four Umbrellas provides a fresh perspective, bending the usual caretaker narrative by enfolding the voice of the person with the disease. Show less

June watches and worries as her husband, Tony, gradually changes his interests, goals, and behaviour. The signs of dementia are all around, but a diagnosi...Show more June watches and worries as her husband, Tony, gradually changes his interests, goals, and behaviour. The signs of dementia are all around, but a diagnosis of Alzheimer's takes seven years. Four Umbrellas provides a fresh perspective, bending the usual caretaker narrative by enfolding the voice of the person with the disease. Show less

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Dementia Reimagined

Dementia Reimagined

Building A Life of Joy and Dignity From Beginning to End

by Powell, Tia

Book - 2019

The cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to...Show more The cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope. Show less

The cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to...Show more The cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope. Show less

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Dementia Together

Dementia Together

How to Communicate to Connect

by Bielak-Smith, Pati

Book - 2020

If you are looking to build and sustain a healthy relationship with someone who has dementia, this book is for you. Dementia is an illness that causes no ...Show more If you are looking to build and sustain a healthy relationship with someone who has dementia, this book is for you. Dementia is an illness that causes no physical pain. Yet ask anyone who cares about someone with Alzheimer's or another dementia if their heart isn't aching. The pain in dementia comes not from the illness, but from feeling hopeless, alone, or disconnected from someone you care about. And a broken relationship can be healed. This book is for family members and friends, for spouses, caregivers, and those who simply care. It outlines a path to a life with dementia that includes more life and less illness. With imagination, compassion, empathy, and quiet humor, the real-life stories in Dementia Together show you how to build a healthy dementia relationship. Because there are ways to communicate that result in greater capacity to receive as well as to provide both warm connection and practical collaboration. Living with dementia gives everyone an opportunity to grow their hearts bigger. This book shows you how. Show less

If you are looking to build and sustain a healthy relationship with someone who has dementia, this book is for you. Dementia is an illness that causes no ...Show more If you are looking to build and sustain a healthy relationship with someone who has dementia, this book is for you. Dementia is an illness that causes no physical pain. Yet ask anyone who cares about someone with Alzheimer's or another dementia if their heart isn't aching. The pain in dementia comes not from the illness, but from feeling hopeless, alone, or disconnected from someone you care about. And a broken relationship can be healed. This book is for family members and friends, for spouses, caregivers, and those who simply care. It outlines a path to a life with dementia that includes more life and less illness. With imagination, compassion, empathy, and quiet humor, the real-life stories in Dementia Together show you how to build a healthy dementia relationship. Because there are ways to communicate that result in greater capacity to receive as well as to provide both warm connection and practical collaboration. Living with dementia gives everyone an opportunity to grow their hearts bigger. This book shows you how. Show less

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Creating Moments of Joy Along the Alzheimer's Journey

Creating Moments of Joy Along the Alzheimer's Journey

by Brackey, Jolene

Book - 2017

The beloved best seller has been revised and expanded for the fifth edition. Jolene Brackey has a vision: that we will soon look beyond the challenges of ...Show more The beloved best seller has been revised and expanded for the fifth edition. Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer's, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger. The new edition of Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, new stories, and generous helpings of humor. In this volume, Brackey reveals that our greatest teacher is having cared for and loved someone with Alzheimer's and that often what we have most to learn about is ourselves. Show less

The beloved best seller has been revised and expanded for the fifth edition. Jolene Brackey has a vision: that we will soon look beyond the challenges of ...Show more The beloved best seller has been revised and expanded for the fifth edition. Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer's, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger. The new edition of Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, new stories, and generous helpings of humor. In this volume, Brackey reveals that our greatest teacher is having cared for and loved someone with Alzheimer's and that often what we have most to learn about is ourselves. Show less

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The Inheritance

The Inheritance

A Family on the Front Lines of the Battle Against Alzheimer's Disease

by Kapsambelis, Niki

Book - 2017

An inspiring race against time: The courageous, hopeful story of the one family who may hold the key to finding a cure for Alzheimer's disease. Every sixt...Show more An inspiring race against time: The courageous, hopeful story of the one family who may hold the key to finding a cure for Alzheimer's disease. Every sixty-nine seconds, someone is diagnosed with Alzheimer's disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer's, an inherited genetic mutation that causes the disease in 100 percent of cases, and has a 50 percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, Karla, has inherited responsibility for all of them. But rather than give up in the face of such news, the DeMoes have agreed to spend their precious, abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer's research and offers the brightest hope for future treatments--and possibly a cure. Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer's through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery. Their tale is intertwined with the dramatic narrative history of the disease, the cutting-edge research that brings us ever closer to a possible cure, and the accounts of the extraordinary doctors spearheading these groundbreaking studies. From the oil fields of North Dakota to the jungles of Colombia, this incredible narrative redefines courage in the face of one of the most pervasive and mysterious pandemics of our time. Show less

An inspiring race against time: The courageous, hopeful story of the one family who may hold the key to finding a cure for Alzheimer's disease. Every sixt...Show more An inspiring race against time: The courageous, hopeful story of the one family who may hold the key to finding a cure for Alzheimer's disease. Every sixty-nine seconds, someone is diagnosed with Alzheimer's disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer's, an inherited genetic mutation that causes the disease in 100 percent of cases, and has a 50 percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, Karla, has inherited responsibility for all of them. But rather than give up in the face of such news, the DeMoes have agreed to spend their precious, abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer's research and offers the brightest hope for future treatments--and possibly a cure. Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer's through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery. Their tale is intertwined with the dramatic narrative history of the disease, the cutting-edge research that brings us ever closer to a possible cure, and the accounts of the extraordinary doctors spearheading these groundbreaking studies. From the oil fields of North Dakota to the jungles of Colombia, this incredible narrative redefines courage in the face of one of the most pervasive and mysterious pandemics of our time. Show less

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Feeding My Mother

Feeding My Mother

Comfort and Laughter in the Kitchen as My Mom Lives With Memory Loss

by Arden, Jann

Book - 2017

Based on her hugely popular Facebook posts and Instagram photos, Feeding My Mother is a frank, funny, inspirational and piercingly honest account of the t...Show more Based on her hugely popular Facebook posts and Instagram photos, Feeding My Mother is a frank, funny, inspirational and piercingly honest account of the transformation in Jann Arden's life that has turned her into the primary "parent" to her mom, who is in the grip of Alzheimer's. Jann Arden moved in to a house just across the way from her parents in rural Alberta to be close to them but also so they could be her refuge from the demands of the music business and a performing career. Funny how time works. Since her dad died in 2015, Jann cooks for her mom five or six times a week. Her mom finds comfort in her daughter's kitchen, not just in the delicious food but also just sitting with her as she cooks. And Jann finds some peace in caring for her mom, even as her mom slowly becomes a stranger. "If you told me two years ago that I'd be here," Jann writes, "I wouldn't have believed it. And yet we still fall into so much laughter, feel so much insane gladness and joy. It's such a contrast from one minute to the next and it teaches me constantly: it makes me stronger and more humble and more empathetic and caring and kind." The many people who are dealing with a loved one who is losing it will find inspiration and strength in Jann's wholehearted, loving response and her totally Jann take on the upside-down world of a daughter mothering her mother. Feeding My Mother is one heck of an affirmation that life just keeps on keeping on, and a wonderful example of how you have to roll with it. Show less

Based on her hugely popular Facebook posts and Instagram photos, Feeding My Mother is a frank, funny, inspirational and piercingly honest account of the t...Show more Based on her hugely popular Facebook posts and Instagram photos, Feeding My Mother is a frank, funny, inspirational and piercingly honest account of the transformation in Jann Arden's life that has turned her into the primary "parent" to her mom, who is in the grip of Alzheimer's. Jann Arden moved in to a house just across the way from her parents in rural Alberta to be close to them but also so they could be her refuge from the demands of the music business and a performing career. Funny how time works. Since her dad died in 2015, Jann cooks for her mom five or six times a week. Her mom finds comfort in her daughter's kitchen, not just in the delicious food but also just sitting with her as she cooks. And Jann finds some peace in caring for her mom, even as her mom slowly becomes a stranger. "If you told me two years ago that I'd be here," Jann writes, "I wouldn't have believed it. And yet we still fall into so much laughter, feel so much insane gladness and joy. It's such a contrast from one minute to the next and it teaches me constantly: it makes me stronger and more humble and more empathetic and caring and kind." The many people who are dealing with a loved one who is losing it will find inspiration and strength in Jann's wholehearted, loving response and her totally Jann take on the upside-down world of a daughter mothering her mother. Feeding My Mother is one heck of an affirmation that life just keeps on keeping on, and a wonderful example of how you have to roll with it. Show less

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The Spectrum of Hope

The Spectrum of Hope

An Optimistic and New Approach to Alzheimer's Disease and Other Dementias

by Devi, Gayatri

Book - 2017

Imagine finding a glimmer of good news in a diagnosis of Alzheimer's. And imagine how that would change the outlook of the 5 million Americans who suffer ...Show more Imagine finding a glimmer of good news in a diagnosis of Alzheimer's. And imagine how that would change the outlook of the 5 million Americans who suffer from Alzheimer's disease and other dementias, not to mention their families, loved ones, and caretakers. A neurologist who's been specializing in dementia and memory loss for more than 20 years, Dr. Gayatri Devi rewrites the story of Alzheimer's by defining it as a spectrum disorder--like autism, Alzheimer's is a disease that affects different people differently. She encourages people who are worried about memory impairment to seek a diagnosis, because early treatment will enable doctors and caregivers to manage the disease more effectively through drugs and other therapies. Told through the stories of Dr. Devi's patients, The Spectrum of Hope is the kind of narrative medical writing that grips the reader, humanizes the science, and offers equal parts practical advice and wisdom with skillful ease. But beyond the pleasures of great reading, it's a book that offers real hope. Here are chapters on how to maintain independence and dignity; how to fight depression, anxiety, and apathy; how to communicate effectively with a person suffering from dementia. Plus chapters on sexuality, genetics, going public with the diagnosis, even putting together a bucket list--because through her practice, Dr. Devi knows that the majority of Alzheimer's patients continue to live and work in their communities. They babysit their grandkids, drive to the store (or own the store), serve their clients, or otherwise live fulfilling lives. That's news that 5 million people are waiting to hear. Show less

Imagine finding a glimmer of good news in a diagnosis of Alzheimer's. And imagine how that would change the outlook of the 5 million Americans who suffer ...Show more Imagine finding a glimmer of good news in a diagnosis of Alzheimer's. And imagine how that would change the outlook of the 5 million Americans who suffer from Alzheimer's disease and other dementias, not to mention their families, loved ones, and caretakers. A neurologist who's been specializing in dementia and memory loss for more than 20 years, Dr. Gayatri Devi rewrites the story of Alzheimer's by defining it as a spectrum disorder--like autism, Alzheimer's is a disease that affects different people differently. She encourages people who are worried about memory impairment to seek a diagnosis, because early treatment will enable doctors and caregivers to manage the disease more effectively through drugs and other therapies. Told through the stories of Dr. Devi's patients, The Spectrum of Hope is the kind of narrative medical writing that grips the reader, humanizes the science, and offers equal parts practical advice and wisdom with skillful ease. But beyond the pleasures of great reading, it's a book that offers real hope. Here are chapters on how to maintain independence and dignity; how to fight depression, anxiety, and apathy; how to communicate effectively with a person suffering from dementia. Plus chapters on sexuality, genetics, going public with the diagnosis, even putting together a bucket list--because through her practice, Dr. Devi knows that the majority of Alzheimer's patients continue to live and work in their communities. They babysit their grandkids, drive to the store (or own the store), serve their clients, or otherwise live fulfilling lives. That's news that 5 million people are waiting to hear. Show less

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Diet for the Mind

Diet for the Mind

The Latest Science on What to Eat to Prevent Alzheimer's and Cognitive Decline--from the Creator of the MIND Diet

by Morris, Martha Clare

Book - 2017

Looks at the role that diet plays in brain health and the prevention of cognitive decline and offers a diet designed to ensure that the brain gets the nutrients it needs to function at its best, along with eighty recipes full of brain nutrients. Looks at the role that diet plays in brain health and the prevention of cognitive decline and offers a diet designed to ensure that the brain gets the nutrients it needs to function at its best, along with eighty recipes full of brain nutrients. Show less

Looks at the role that diet plays in brain health and the prevention of cognitive decline and offers a diet designed to ensure that the brain gets the nutrients it needs to function at its best, along with eighty recipes full of brain nutrients. Looks at the role that diet plays in brain health and the prevention of cognitive decline and offers a diet designed to ensure that the brain gets the nutrients it needs to function at its best, along with eighty recipes full of brain nutrients. Show less

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In Pursuit of Memory

In Pursuit of Memory

The Fight Against Alzheimer's

by Jebelli, Joseph

Book - 2017

A neuroscientist takes readers on a journey around the world and through history, from nineteenth-century Germany to present day India, to examine the science and scientists working to find a cure to Alzheimer's disease. A neuroscientist takes readers on a journey around the world and through history, from nineteenth-century Germany to present day India, to examine the science and scientists working to find a cure to Alzheimer's disease. Show less

A neuroscientist takes readers on a journey around the world and through history, from nineteenth-century Germany to present day India, to examine the science and scientists working to find a cure to Alzheimer's disease. A neuroscientist takes readers on a journey around the world and through history, from nineteenth-century Germany to present day India, to examine the science and scientists working to find a cure to Alzheimer's disease. Show less

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The Songaminute Man

The Songaminute Man

A Tribute to the Unbreakable Bond Between Father and Son

by McDermott, Simon

Book - 2018

When Simon McDermott first noticed his dad Ted's sudden flares of temper and fits of forgetfulness, he couldn't have guessed what lay ahead. Then came the...Show more When Simon McDermott first noticed his dad Ted's sudden flares of temper and fits of forgetfulness, he couldn't have guessed what lay ahead. Then came the devastating, inevitable diagnosis: dementia. As Ted retreated into his own world, Simon and his mum Linda desperately tried to reach him until at last: an idea. Turning the ignition in his mum's little runaround, Simon hit play on Ted's favourite song Quando Quando Quando. And like that, they were just two mates driving around Blackburn, singing at the top of their lungs. Simon filmed their adventure, uploaded the video to YouTube and woke up to messages, tweets and his phone ringing off the hook. Their carpool karaoke had gone viral all the way across the globe. But a record deal, Pride of Britain Awards, over £130,000 raised for The Alzheimer's Society and a Top 10 single later, Simon was still losing Ted. That's when he made a decision. His Dad - the storyteller of his childhood and his best friend - couldn't tell his own story, so Simon would tell it for him. This is that story. Set in the heart of the Black Country just before WWII, and written with the help of Ted's friends and family, The Songaminute Man recalls a boy who became a gutsy and fiercely loyal man. It remembers a childhood of sleeping top-to-toe, rationing, adventure in the woods and making-do-and-mending, a close-knit community, and a life-long passion for music. Full of poignant moments, the ups and downs of family life and treasured memories, The Songaminute Man is a story of two halves: a celebration of the man Ted was, and a powerful and moving account of caring for a loved one. Show less

When Simon McDermott first noticed his dad Ted's sudden flares of temper and fits of forgetfulness, he couldn't have guessed what lay ahead. Then came the...Show more When Simon McDermott first noticed his dad Ted's sudden flares of temper and fits of forgetfulness, he couldn't have guessed what lay ahead. Then came the devastating, inevitable diagnosis: dementia. As Ted retreated into his own world, Simon and his mum Linda desperately tried to reach him until at last: an idea. Turning the ignition in his mum's little runaround, Simon hit play on Ted's favourite song Quando Quando Quando. And like that, they were just two mates driving around Blackburn, singing at the top of their lungs. Simon filmed their adventure, uploaded the video to YouTube and woke up to messages, tweets and his phone ringing off the hook. Their carpool karaoke had gone viral all the way across the globe. But a record deal, Pride of Britain Awards, over £130,000 raised for The Alzheimer's Society and a Top 10 single later, Simon was still losing Ted. That's when he made a decision. His Dad - the storyteller of his childhood and his best friend - couldn't tell his own story, so Simon would tell it for him. This is that story. Set in the heart of the Black Country just before WWII, and written with the help of Ted's friends and family, The Songaminute Man recalls a boy who became a gutsy and fiercely loyal man. It remembers a childhood of sleeping top-to-toe, rationing, adventure in the woods and making-do-and-mending, a close-knit community, and a life-long passion for music. Full of poignant moments, the ups and downs of family life and treasured memories, The Songaminute Man is a story of two halves: a celebration of the man Ted was, and a powerful and moving account of caring for a loved one. Show less

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Fighting for My Life

Fighting for My Life

How to Thrive in the Shadow of Alzheimer's

by Tyrone, Jamie TenNapel

Book - 2019

A uniquely hopeful exploration of the impact of Alzheimer's disease. This book combines the compelling story of Jamie Tyrone, a self-proclaimed "lab ...Show more A uniquely hopeful exploration of the impact of Alzheimer's disease. This book combines the compelling story of Jamie Tyrone, a self-proclaimed "lab rat" diagnosed with a 91 percent chance of contracting AD, with the medical expertise of Dr. Marwan Sabbagh, a leading authority on Alzheimer's and dementia. Show less

A uniquely hopeful exploration of the impact of Alzheimer's disease. This book combines the compelling story of Jamie Tyrone, a self-proclaimed "lab ...Show more A uniquely hopeful exploration of the impact of Alzheimer's disease. This book combines the compelling story of Jamie Tyrone, a self-proclaimed "lab rat" diagnosed with a 91 percent chance of contracting AD, with the medical expertise of Dr. Marwan Sabbagh, a leading authority on Alzheimer's and dementia. Show less

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The Problem of Alzheimer's

The Problem of Alzheimer's

How Science, Culture, and Politics Turned A Rare Disease Into A Crisis and What We Can Do About It

by Karlawish, Jason

Book - 2021

A comprehensive and revelatory book on one of today's most prevalent illnesses. In 2019, 5.8 million Americans had Alzheimer's, and more than half a milli...Show more A comprehensive and revelatory book on one of today's most prevalent illnesses. In 2019, 5.8 million Americans had Alzheimer's, and more than half a million will die of Alzheimer's disease dementia. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2025. Part case studies, part meditation on the past, present and future of the disease, The Disease of the Century traces Alzheimer's disease from its discovery and tells the story of the biomedical breakthroughs that may allow it to finally be prevented and treated by medicine. While it is a scathing indictment of our health care system, it is also an argument for how we can live with dementia; the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Disease of the Century takes us inside cutting edge laboratories, patients' homes, caregivers' support groups, progressive assisted living facilities, and Jason Karlawish's own practice at the Penn Memory Center. Show less

A comprehensive and revelatory book on one of today's most prevalent illnesses. In 2019, 5.8 million Americans had Alzheimer's, and more than half a milli...Show more A comprehensive and revelatory book on one of today's most prevalent illnesses. In 2019, 5.8 million Americans had Alzheimer's, and more than half a million will die of Alzheimer's disease dementia. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2025. Part case studies, part meditation on the past, present and future of the disease, The Disease of the Century traces Alzheimer's disease from its discovery and tells the story of the biomedical breakthroughs that may allow it to finally be prevented and treated by medicine. While it is a scathing indictment of our health care system, it is also an argument for how we can live with dementia; the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Disease of the Century takes us inside cutting edge laboratories, patients' homes, caregivers' support groups, progressive assisted living facilities, and Jason Karlawish's own practice at the Penn Memory Center. Show less

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The XX Brain

The XX Brain

The Groundbreaking Science Empowering Women to Maximize Cognitive Health and Prevent Alzheimer's Disease

by Mosconi, Lisa

Book - 2020

The first book to address cognitive enhancement and Alzheimer's prevention specifically in women--and to frame brain health as an essential component of Women's Health. The first book to address cognitive enhancement and Alzheimer's prevention specifically in women--and to frame brain health as an essential component of Women's Health. Show less

The first book to address cognitive enhancement and Alzheimer's prevention specifically in women--and to frame brain health as an essential component of Women's Health. The first book to address cognitive enhancement and Alzheimer's prevention specifically in women--and to frame brain health as an essential component of Women's Health. Show less

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Remember

Remember

The Science of Memory and the Art of Forgetting

by Genova, Lisa

Book - 2021

The Harvard-trained neuroscientist presents an exploration of the intricacies of human memory that distinguishes between normal and concerning memory loss while explaining the profound roles of sleep, stress, and other contributing influences. The Harvard-trained neuroscientist presents an exploration of the intricacies of human memory that distinguishes between normal and concerning memory loss while explaining the profound roles of sleep, stress, and other contributing influences. Show less

The Harvard-trained neuroscientist presents an exploration of the intricacies of human memory that distinguishes between normal and concerning memory loss while explaining the profound roles of sleep, stress, and other contributing influences. The Harvard-trained neuroscientist presents an exploration of the intricacies of human memory that distinguishes between normal and concerning memory loss while explaining the profound roles of sleep, stress, and other contributing influences. Show less

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Is It Alzheimer's?

Is It Alzheimer's?

101 Answers to your Most Pressing Questions About Memory Loss and Dementia

by Rabins, Peter V.

Book - 2020

A medical expert answers your common questions about memory loss, causes of dementia, diagnosis, prevention, treatment, and more. A medical expert answers your common questions about memory loss, causes of dementia, diagnosis, prevention, treatment, and more. Show less

A medical expert answers your common questions about memory loss, causes of dementia, diagnosis, prevention, treatment, and more. A medical expert answers your common questions about memory loss, causes of dementia, diagnosis, prevention, treatment, and more. Show less

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Somebody I Used to Know

Somebody I Used to Know

A Memoir

by Mitchell, Wendy

Book - 2018

A brave and illuminating journey inside the mind, heart, and life of a person with early-onset Alzheimer's disease. A brave and illuminating journey inside the mind, heart, and life of a person with early-onset Alzheimer's disease. Show less

A brave and illuminating journey inside the mind, heart, and life of a person with early-onset Alzheimer's disease. A brave and illuminating journey inside the mind, heart, and life of a person with early-onset Alzheimer's disease. Show less

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Be With

Be With

Letters to A Caregiver

by Barnes, Mike

Book - 2018

Be With: Letters to a Caregiver is what its straightforward title promises: 4 letters to a long-term dementia caregiver, drawing on Barne's own years of c...Show more Be With: Letters to a Caregiver is what its straightforward title promises: 4 letters to a long-term dementia caregiver, drawing on Barne's own years of caring for his mother Mary through the stages of moderate, severe, very severe, and late stage Alzheimer's. The book is short: the letters range from 2,500 to 7,000 words, and are written in short takes of a few lines or paragraphs. It is meant to be a dippable source of clarity and solace, while also telling a compelling personal story. It is designed for harried caregivers who might have time for a 2-line section, or a 20-line, or one letter, or the whole thing. Be With balances candour about the devastations of dementia with insights into its paradoxical and indeed often uncanny enhancements of life, the ways in which it sometimes calls forth capacities long buried by the defenses of full cognition. In the words of the book itself: "All people with dementia, and some of them strikingly, show depths of sensitive awareness, resilience rising to heroism, and a capacity for joyful relatedness that is almost totally missing from public discussions of their condition." The two-word title encapsulates the book's core emphasis on fellowship and accurate witness: to simply be with who, and what, is actually before us. Show less

Be With: Letters to a Caregiver is what its straightforward title promises: 4 letters to a long-term dementia caregiver, drawing on Barne's own years of c...Show more Be With: Letters to a Caregiver is what its straightforward title promises: 4 letters to a long-term dementia caregiver, drawing on Barne's own years of caring for his mother Mary through the stages of moderate, severe, very severe, and late stage Alzheimer's. The book is short: the letters range from 2,500 to 7,000 words, and are written in short takes of a few lines or paragraphs. It is meant to be a dippable source of clarity and solace, while also telling a compelling personal story. It is designed for harried caregivers who might have time for a 2-line section, or a 20-line, or one letter, or the whole thing. Be With balances candour about the devastations of dementia with insights into its paradoxical and indeed often uncanny enhancements of life, the ways in which it sometimes calls forth capacities long buried by the defenses of full cognition. In the words of the book itself: "All people with dementia, and some of them strikingly, show depths of sensitive awareness, resilience rising to heroism, and a capacity for joyful relatedness that is almost totally missing from public discussions of their condition." The two-word title encapsulates the book's core emphasis on fellowship and accurate witness: to simply be with who, and what, is actually before us. Show less

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Neither Married Nor Single

Neither Married Nor Single

When your Partner Has Alzheimer's or Other Dementia

by Kirkpatrick, David

Book - 2018

When Dr. David Kirkpatrick's wife was diagnosed with Alzheimer's disease in 2007, their lives--and marriage--changed forever. In this clear and honest gui...Show more When Dr. David Kirkpatrick's wife was diagnosed with Alzheimer's disease in 2007, their lives--and marriage--changed forever. In this clear and honest guide for those loving a partner with dementia, Dr. Kirkpatrick shares his double perspective as both a loving and grief-stricken husband coping with a profound change in his marriage, and as a geriatric psychiatrist pushing to learn and do as much as he can for his wife. Dr. Kirkpatrick tackles the tough questions about caretaking, grief, loss, love and sex for those whose partners have the disease. Whether your partner has been recently diagnosed or has been living with the disease for many years, Neither Married Nor Single will provide you with effective strategies and coping mechanisms for living and loving in an Alzheimer's marriage. Show less

When Dr. David Kirkpatrick's wife was diagnosed with Alzheimer's disease in 2007, their lives--and marriage--changed forever. In this clear and honest gui...Show more When Dr. David Kirkpatrick's wife was diagnosed with Alzheimer's disease in 2007, their lives--and marriage--changed forever. In this clear and honest guide for those loving a partner with dementia, Dr. Kirkpatrick shares his double perspective as both a loving and grief-stricken husband coping with a profound change in his marriage, and as a geriatric psychiatrist pushing to learn and do as much as he can for his wife. Dr. Kirkpatrick tackles the tough questions about caretaking, grief, loss, love and sex for those whose partners have the disease. Whether your partner has been recently diagnosed or has been living with the disease for many years, Neither Married Nor Single will provide you with effective strategies and coping mechanisms for living and loving in an Alzheimer's marriage. Show less

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Coping With Behavior Change in Dementia

Coping With Behavior Change in Dementia

A Family Caregiver's Guide

by Spencer, Beth

Book - 2015

This handbook is intended to help families understand possible causes of common behavior changes and learn to respond more effectively to behaviors. The b...Show more This handbook is intended to help families understand possible causes of common behavior changes and learn to respond more effectively to behaviors. The book includes strategies for the following: challenges with dressing, eating, bathing, toileting, mouth care; agitation, anxiety, anger and aggression; sleep and sundowning; wanting to go home; wandering, walking or pacing; repetitive behaviors; hallucinations, delusions and paranoia; physical intimacy and sexual behavior. There are also sections about communication and problem-solving, a glossary and an extensive list of other resources. Show less

This handbook is intended to help families understand possible causes of common behavior changes and learn to respond more effectively to behaviors. The b...Show more This handbook is intended to help families understand possible causes of common behavior changes and learn to respond more effectively to behaviors. The book includes strategies for the following: challenges with dressing, eating, bathing, toileting, mouth care; agitation, anxiety, anger and aggression; sleep and sundowning; wanting to go home; wandering, walking or pacing; repetitive behaviors; hallucinations, delusions and paranoia; physical intimacy and sexual behavior. There are also sections about communication and problem-solving, a glossary and an extensive list of other resources. Show less

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The Last Ocean

The Last Ocean

A Journey Through Memory and Forgetting

by Gerrard, Nicci

Book - 2019

From the award-winning journalist and author, a lyrical, raw and humane investigation of dementia that explores both the journeys of the people with live with the condition and those of their loved ones. From the award-winning journalist and author, a lyrical, raw and humane investigation of dementia that explores both the journeys of the people with live with the condition and those of their loved ones. Show less

From the award-winning journalist and author, a lyrical, raw and humane investigation of dementia that explores both the journeys of the people with live with the condition and those of their loved ones. From the award-winning journalist and author, a lyrical, raw and humane investigation of dementia that explores both the journeys of the people with live with the condition and those of their loved ones. Show less

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The Dementia Caregiver

The Dementia Caregiver

A Guide to Caring for Someone With Alzheimer's Disease and Other Neurocognitive Disorders

by Agronin, Marc E.

Book - 2016

Becoming a caregiver for someone with Alzheimer's disease or another neurocognitive disorder can be an unexpected, undesirable, underappreciated--and yet ...Show more Becoming a caregiver for someone with Alzheimer's disease or another neurocognitive disorder can be an unexpected, undesirable, underappreciated--and yet noble role. It is heartbreaking to watch someone lose the very cognitive capacities that once helped to define them as a person. But because of the nature of these disorders, the only way to become an effective caregiver and cope with the role's many daily challenges is to become well-informed about the disease. With the right information, resources and tips on caregiving and working with professionals, you can become your own expert at both caring for your charge and taking care of yourself. In these pages, Marc Agronin guides readers through a better understanding of the changes their loved one may be going through, and helps them tap into the various resources available to them as they embark on an uncertain caregiving journey. Insisting that a caregiver also maintain his or her own health and well being, Agronin guides caregivers in their efforts to provide care, but to also look to themselves as recipients of care from themselves and others. Shedding light on the debilitating disorders themselves as well as their everyday realities, this book is a much-needed resource for anyone caring for another person suffering from Alzheimer's disease and other neurocognitive disorders. Show less

Becoming a caregiver for someone with Alzheimer's disease or another neurocognitive disorder can be an unexpected, undesirable, underappreciated--and yet ...Show more Becoming a caregiver for someone with Alzheimer's disease or another neurocognitive disorder can be an unexpected, undesirable, underappreciated--and yet noble role. It is heartbreaking to watch someone lose the very cognitive capacities that once helped to define them as a person. But because of the nature of these disorders, the only way to become an effective caregiver and cope with the role's many daily challenges is to become well-informed about the disease. With the right information, resources and tips on caregiving and working with professionals, you can become your own expert at both caring for your charge and taking care of yourself. In these pages, Marc Agronin guides readers through a better understanding of the changes their loved one may be going through, and helps them tap into the various resources available to them as they embark on an uncertain caregiving journey. Insisting that a caregiver also maintain his or her own health and well being, Agronin guides caregivers in their efforts to provide care, but to also look to themselves as recipients of care from themselves and others. Shedding light on the debilitating disorders themselves as well as their everyday realities, this book is a much-needed resource for anyone caring for another person suffering from Alzheimer's disease and other neurocognitive disorders. Show less

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Caring for A Loved One With Dementia

Caring for A Loved One With Dementia

A Mindfulness-based Guide for Reducing Stress and Making the Best of your Journey Together

by Manteau-Rao, Marguerite

Book - 2016

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Communicating Across Dementia

Communicating Across Dementia

How to Talk, Listen, Provide Stimulation and Give Comfort

by Miller, Stephen

Book - 2015

If someone close to you has dementia (Alzheimer's Disease is the most common type) you will know that communication gradually becomes more difficult and a...Show more If someone close to you has dementia (Alzheimer's Disease is the most common type) you will know that communication gradually becomes more difficult and at times frustrating. This jargon-free book explains why this happens and how you have to rethink your whole approach by: making key changes to the way you communicate, creating the right physical environment for good communication, and bearing in mind that communication in the broadest sense goes well beyond talking; there is also a wide range of non-verbal communication such as facial expression, posture and touch. The person with dementia in your life needs your help. Show less

If someone close to you has dementia (Alzheimer's Disease is the most common type) you will know that communication gradually becomes more difficult and a...Show more If someone close to you has dementia (Alzheimer's Disease is the most common type) you will know that communication gradually becomes more difficult and at times frustrating. This jargon-free book explains why this happens and how you have to rethink your whole approach by: making key changes to the way you communicate, creating the right physical environment for good communication, and bearing in mind that communication in the broadest sense goes well beyond talking; there is also a wide range of non-verbal communication such as facial expression, posture and touch. The person with dementia in your life needs your help. Show less

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When Someone You Know Has Dementia

When Someone You Know Has Dementia

Practical Advice for Families and Caregivers

by Andrews, June

Book - 2016

Unlike other books that look at this condition purely from the perspective of caretakers, When Someone You Know Has Dementia provides insight into what it...Show more Unlike other books that look at this condition purely from the perspective of caretakers, When Someone You Know Has Dementia provides insight into what it feels like to have dementia, how you can deal with it, and what you can do to keep it at bay. Packed with practical tips for providing what people with dementia or Alzheimer's want and need, this guide will help ensure that they can stay well and happy as long as possible. Show less

Unlike other books that look at this condition purely from the perspective of caretakers, When Someone You Know Has Dementia provides insight into what it...Show more Unlike other books that look at this condition purely from the perspective of caretakers, When Someone You Know Has Dementia provides insight into what it feels like to have dementia, how you can deal with it, and what you can do to keep it at bay. Packed with practical tips for providing what people with dementia or Alzheimer's want and need, this guide will help ensure that they can stay well and happy as long as possible. Show less

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